Tuesday, May 23, 2017
Tuesday, May 16, 2017
Jason Dunn Story. He is SUPERMAN!
Jason Dunn occupation, retired playa. my girlfriend settled me down. at least for now haha. I was diagnosed at age 6. I have generalized dystonia. I’ve had Deep Brain Stimulation Surgery 5 times, my first DBS Surgery was in 2000 and I was his first dystonia patient after about a year with no results he thought he didn’t get the electrodes in the right spot so he tried moving them 4 times between 2000 and 2004 I think. the only Doctor that has helped a little was Dr. Vitek. I went to see him in 2008. I wish I could still go see him, but he moved to Minnesota. He wasn’t going to give up like my past two doctors. I’m going to go see a new Doctor December 18th. I definitely have good and bad days. one of my best friends i met through the DMRF has to be Jessica Feeley. I text, email her a lot for help, advice, and support. I’ve been on local news and TV and National Geographic. That story keeps promoting awareness on youtube. It has almost 3 milion hits and that’s how I met my girlfriend she commented on it and i commented back. I’d have to think that the world knows more about dystonia because of me and also with the help of my agent, Mike Delise, who is a life-long friend and supporter.
Friday, May 5, 2017
So I am into day 10 after receiving my third round of Botox. This last time was rough for me. I ended up getting sick (a terrible head/chest cold) on top of the usual flu-like side effects from the Botox. I felt so weak and drained.
The first few nights I woke up soaked in sweat and my appetite was low. I also had cold chills and felt feverish. I pretty much laid on the sofa for a week and tried to rest as much as possible. After 8 days I finally felt like I was getting some of my energy back. My pain has gone down a few points. On a scale of 1-10 my pain was a 9 before Botox and now fluctuates between a 7-8. I still have the pulling and tight muscles in my neck. It is just less intense. What is most bothersome is the disorientation. I feel like I had several margaritas (with the cheap tequila) and my head is a bowling ball floating on a pin.
I keep a daily journal of my symptoms and and pain level so that I can refer to my last injections and see what is different and what is the same.
Here are the links to my journals if this interests you.
Saturday, April 29, 2017
On my journey to find a way to manage my dystonia am am seeking treatment in June 2017 with Dr. Joaquin Farias.
Dr. Farias holds group dystonia workshops in Toronto, Canada and I feel like I want to try every avenue before considering Deep Brain Stimulation surgery. All of the treatments I have tried thus far have been helpful but the progression is slow. I am not a patient person and I want my life back. I've read his book "Limitless. HOW YOUR MOVEMENTS CAN HEAL YOUR BRAIN. An Essay On The Neurodynamics Of Dystonia." three times already trying to absorb all of the information and regain some hope that I will live a normal life again. All of my doctors are super-supportive of my upcoming trip and hope that Dr. Farias can find the missing piece to my dystonic puzzle.
To learn more about Dr. Farias please visit his website.