My name is Tris Ann Gaydos. I am a wife and mother of two sons. In November of 2014 at the age of 46, I was Diagnosed with Cervical Dystonia.
I have created this blog to share my journey with Cervical Dystonia and a later diagnosis of Oral Dystonia (Meige's Syndrome) as well.
I made the decision to take a non-traditional approach to my healing by using Functional Neurology along with traditional medicine and wanted to share my story.
The last week of June 2016 I started working with Dr. George Kukurin to help me try to manage my dystonic symptoms and continue my post care after my visit to Plasticity Brain Center in Orlando, Florida. Unfortunately, the progress we made that week in Florida did not stick with the at-home therapy and I had to seek treatment here in Pittsburgh. I have a severe case of cervical dystonia and I need a more aggressive approach. I am truly so grateful and fortunate to have Dr. Kukurin here in my hometown to attempt to help me get my dystonia and my life under control.
By having him work with me once every two weeks we can change my at-home therapy and exercises as my body is changing and readjusting to different movements and stimulation. It has not been easy. The pain is excruciating and there are days when I just want to throw in the towel, but I am a hard-headed gal and I want nothing more than to manage this dreadful disorder and get my life back to some kind of "normal".
Here are my personal videos that he has taken since we started working together.