Tuesday, May 23, 2017
Tuesday, May 16, 2017
Jason Dunn Story. He is SUPERMAN!
Jason Dunn occupation, retired playa. my girlfriend settled me down. at least for now haha. I was diagnosed at age 6. I have generalized dystonia. I’ve had Deep Brain Stimulation Surgery 5 times, my first DBS Surgery was in 2000 and I was his first dystonia patient after about a year with no results he thought he didn’t get the electrodes in the right spot so he tried moving them 4 times between 2000 and 2004 I think. the only Doctor that has helped a little was Dr. Vitek. I went to see him in 2008. I wish I could still go see him, but he moved to Minnesota. He wasn’t going to give up like my past two doctors. I’m going to go see a new Doctor December 18th. I definitely have good and bad days. one of my best friends i met through the DMRF has to be Jessica Feeley. I text, email her a lot for help, advice, and support. I’ve been on local news and TV and National Geographic. That story keeps promoting awareness on youtube. It has almost 3 milion hits and that’s how I met my girlfriend she commented on it and i commented back. I’d have to think that the world knows more about dystonia because of me and also with the help of my agent, Mike Delise, who is a life-long friend and supporter.
Friday, May 5, 2017
So I am into day 10 after receiving my third round of Botox. This last time was rough for me. I ended up getting sick (a terrible head/chest cold) on top of the usual flu-like side effects from the Botox. I felt so weak and drained.
The first few nights I woke up soaked in sweat and my appetite was low. I also had cold chills and felt feverish. I pretty much laid on the sofa for a week and tried to rest as much as possible. After 8 days I finally felt like I was getting some of my energy back. My pain has gone down a few points. On a scale of 1-10 my pain was a 9 before Botox and now fluctuates between a 7-8. I still have the pulling and tight muscles in my neck. It is just less intense. What is most bothersome is the disorientation. I feel like I had several margaritas (with the cheap tequila) and my head is a bowling ball floating on a pin.
I keep a daily journal of my symptoms and and pain level so that I can refer to my last injections and see what is different and what is the same.
Here are the links to my journals if this interests you.